Phone
Many families find that during hospital stays, rest is hard to come by.
It may be in your best interest to find a trusted friend who can start a phone tree for you. This person will be the one person you give updates to, along with a telephone or email list. Keeping family and friends updated can be as simple as making one phone call.
"Honestly, with this one, I would appoint one person to be the official spokesperson. I found that when I talked about it so much, it would either make me think to much about it and get depressed or mad or I would minimize what was going on so much that I would make someone angry with me because they thought I was purposefully leaving them out of the loop of what was going on. If you can’t set it up to be just one person then assign certain people to talk to certain friends and family”.- Kim
During hospital stays, decide when and if you want to receive phone calls. Be clear about your wishes. Give your family and friends set hours to call, so as not to interfere with doctors rounds or nap times. Sleep can be hard to come by; the last thing you want during a nap is to be disturbed by a ringing phone. Turn off your cell phone and take the hospital phone off the hook if necessary.
Website
It seems like all our parents agree that the very best method to update friends and family about treatment is to have a web page. There are several free web hosts with web sites designed specially to keep friends and family up to date on your child’s progress.
”It beats sending out emails and potentially forgetting someone.”
-Scott and Jennifer
“I created a web site. It's a wonderful way to update loved ones on appointments, test results, chemo etc. without having to repeat it over and over to everyone when you may just want to sleep”.
-Cheryl
Free websites
www.caringbridge.org
www.carepages.org
www.blogspot.com
“As far as communicating to family & friends, the best source of help is of course setting up a Caringbridge website. There is just no possible way to contact all of your family & friends to give them updates so this is a great service to use!”- Tiffany
Contributors: Tiffany, Scott and Jennifer and Cheryl
Blogger: Lu Sipos
Many families find that during hospital stays, rest is hard to come by.
It may be in your best interest to find a trusted friend who can start a phone tree for you. This person will be the one person you give updates to, along with a telephone or email list. Keeping family and friends updated can be as simple as making one phone call.
"Honestly, with this one, I would appoint one person to be the official spokesperson. I found that when I talked about it so much, it would either make me think to much about it and get depressed or mad or I would minimize what was going on so much that I would make someone angry with me because they thought I was purposefully leaving them out of the loop of what was going on. If you can’t set it up to be just one person then assign certain people to talk to certain friends and family”.- Kim
During hospital stays, decide when and if you want to receive phone calls. Be clear about your wishes. Give your family and friends set hours to call, so as not to interfere with doctors rounds or nap times. Sleep can be hard to come by; the last thing you want during a nap is to be disturbed by a ringing phone. Turn off your cell phone and take the hospital phone off the hook if necessary.
Website
It seems like all our parents agree that the very best method to update friends and family about treatment is to have a web page. There are several free web hosts with web sites designed specially to keep friends and family up to date on your child’s progress.
”It beats sending out emails and potentially forgetting someone.”
-Scott and Jennifer
“I created a web site. It's a wonderful way to update loved ones on appointments, test results, chemo etc. without having to repeat it over and over to everyone when you may just want to sleep”.
-Cheryl
Free websites
www.caringbridge.org
www.carepages.org
www.blogspot.com
“As far as communicating to family & friends, the best source of help is of course setting up a Caringbridge website. There is just no possible way to contact all of your family & friends to give them updates so this is a great service to use!”- Tiffany
Contributors: Tiffany, Scott and Jennifer and Cheryl
Blogger: Lu Sipos
No comments:
Post a Comment